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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone

Parents of disabled children launched in October 2009 and we are growing day by day and are fastly becoming a major support resource for all




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gastostromy question
cheapsensorytoys
(01-15-2012 06:17 PM)becncharlie Wrote:  hi tash, i was very against charlie havin his gastrostomy but its made our life so much better he was forever pulling his ng tube out and just looked awful where as the peg was hidden and he cudnt pull out and i would choose the peg over ng any day.....never thought id ever feel like this but i do now and its helped with his weight gain too xx

Hello Stranger Smile
How are you all?

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From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

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#21 01-15-2012, 09:04 PM
Hi Smile My son has had his for 5 years now and I have had no problems with the actual tube itself. In fact it is the best thing we ever did for him and has made all of our lives so much easier. Before it feeding was a constant battle and would leave me heartbroken. He never really had an NGT for too long as his consultant prefers the peg when he knows it is going to be long term so we pretty much went straight to it. It is far easier than my experience of the NGT and is hidden so you can see all of that gorgeous face you want to Smile

If you have any questions at all please just ask I am happy to help x
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#22 01-15-2012, 09:20 PM
cheapsensorytoys
Hi everyone we had a phone call yesterday from the royal hospital in belfast telling us that they want ben in this sunday for his gastrostomy on monday morning he first on list.To say iam a nervous wreck is an understatement he was down as urgent and they did tell us we could get a phone call at any time but just put it to the back of our heads. I know it is for the best but iam soo scared can i ask how long your little ones had to stay in hospital for is it a long stay thanks kerryx
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#23 01-16-2012, 12:05 PM
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