Hi,
I have been on this site for a while as my son, now coming up for four, has cerebal Palsy.
Just under two weeks ago my daughter, who is 2 yrs 6mths, never had a problem in her life, colapsed and lost all movement in her right side. After a few minutes she regained control, however by then the ambulance had arrived and we were off to hospital. We then proceeded to spend 2 week in hospital where she underwent every brain test known, the GA for her MRI evoked a 5 hr episode where she lost all control, she was also at the time wearing a EEG monitor. From this they diagnosed Focal Epilepsy. Fits in one part only of the brain causing the paralisis during the seisure, however she remains consious throughout. She is now going to be on meds for the foreseeable future.
Does anyne have experience of this? At the moment we are tentativly home, watching every second for seisures and generally left wondering what on earth just happened. Although her care needs won't be that great, she will be reviewed often at the hospital and just one more thing to think about.
Do you get used to the seisures and Living with worrying whether its happening again? My brain is on overload!
Maria.

So sorry to hear about your little girl, It must have been very scary for you all. I can't offer you any advice as I have no experience I just hope the medication will work well and prevent this from happening again. Big hugs. X

my daughter was diagnose a year ago, at first i was the same, but now one year one i dont worry about it anymore. just look out for warnings when you visit things like the cinema incase any strobe lighting is used anywhere or sometime the flashing of a screen at the cinema can set people off, my daughter has been lucky really as since april she has been seizure free!!