hi all , my freinds son has this brain de generative disorder ..basically he was healthy up untill he reached 4 and had the mmr vaccine ...he went downhill started all drowsy and falling all over the place etc etc ....he is now 7 years and cannot walk or talk this is what they have diagnosed him at ...hes a lovely boy

im just looking for other people in the same boat to ask questions to ...and ask what has helped ...as she said the physio or the consultant (cant remember) said enjoy what life you have with him ....but she is remaining strong as this has happened to a lot of peeps hospitals etc give the worst case and miracles have happened as they are from GOD alone!!

so if you know of anything pls reply

thankyou in advance

ps i suggested brainwave ........

ambreen

Hi i'm so sorry to hear that , with my son problems have been since he was 9 months old and that was hard to come to terms with but your child to get to 4 years old and then go like this most of been so very hard for her . I had look on net there as well couldnt find anything much but they said its a blanket for something else that is going on .

I know a girl who's 2 year old son was fit and healthy and toke the cold and then he couldnt do anything and was told he'd only a few years to life . He is 5 years old now , so it is a miracle everyday longer they have him .

I hope there is someone on here that can help you out with this x

(01-26-2011 08:43 PM)meagain Wrote:  Hi i'm so sorry to hear that , with my son problems have been since he was 9 months old and that was hard to come to terms with but your child to get to 4 years old and then go like this most of been so very hard for her . I had look on net there as well couldnt find anything much but they said its a blanket for something else that is going on .

I know a girl who's 2 year old son was fit and healthy and toke the cold and then he couldnt do anything and was told he'd only a few years to life . He is 5 years old now , so it is a miracle everyday longer they have him .

I hope there is someone on here that can help you out with this x

ahhh thanx sweety

i know its hard for her ....but shes being strong ...

Hello there, hey i am so so sorry to hear that, just remain strong. i know it is hard, and harder more if happened years down the line.

my son was born with anoxic/hypoxic brain damage, we were told josh would never walk talk eat or might not have even last a week. It was the end of our world, honest, but i beleive miracles can happen, as the specialist said that the scan, and extent of his condition was so bad. they called him the miracle baby.

But you will be amazing loving parents, and that is the best medicine ever. he be a special wee child, and you are not alone any tim you need to talk just hop on and chat.

take care

(01-26-2011 09:22 PM)mikey Wrote:  Hello there, hey i am so so sorry to hear that, just remain strong. i know it is hard, and harder more if happened years down the line.

my son was born with anoxic/hypoxic brain damage, we were told josh would never walk talk eat or might not have even last a week. It was the end of our world, honest, but i beleive miracles can happen, as the specialist said that the scan, and extent of his condition was so bad. they called him the miracle baby.

But you will be amazing loving parents, and that is the best medicine ever. he be a special wee child, and you are not alone any tim you need to talk just hop on and chat.

take care

thanx mikey i'll let her know

and wow ur little ones a fighter bless him