I have received my letter this morning to say they aint going to give us mobility just what they gave us before bing high rate care.
What do i do now? Go streight to CAB or ring them and ask how i appeal?..
How did you go about telling them you would get a letter from paed to confim he needed extra care outside?

(03-10-2010 11:18 AM)Lea89x Wrote:  I have received my letter this morning to say they aint going to give us mobility just what they gave us before bing high rate care.
What do i do now? Go streight to CAB or ring them and ask how i appeal?..
How did you go about telling them you would get a letter from paed to confim he needed extra care outside?

what reasons have they given for not giving you mobility Lea? he should get at least low rate for the fact he has a long term illness, you can try and ring them and ask them to explain why he isnt entitled but i would go to CAB and they can handle the appeal for you, if the appeal is unsuccessful you can then go to a tribunal and they are not as scary as you would think, just a panel of 3 ppl who ask you questions that havent come up that will change to outcome, you can take someone from CAB or just a friend for support but for some reason i think its if you are prepared to go that far its unlikely u r frauds
corinne

Hi Corinne.
We rang them and asked why and they said they dont think Sam requires any extra help than a normal 5yr old.
I understand any child of any age are capable of running out into the road etc etc but its very hard to explain why i feel he does require more help.
Not only that, Like i say the school is on the same road as our home and alot of the time my partner has to drive him to school or he ends up having to carry him the majority of the way. (He sometimes crys 'hurtin me' but with hes communcations skills not being so great its hard to find were it hurts.. My only guess is to think its either hes hips/knees or him getting chest pains as he sometimes seems very breath less.. so unsure if it related back to hes heart problems?)
Sam is also very accident prone and tends to fall alot more that the average child (the amount of 'accident at school letters we have had is unreal lol)but again, Im unsure if this is hes Glue ear effecting hes balance or hes flat feet? (I know alot who have flat feet and dont fall as often as him so im looking more towards the glue ear however I belive its the flat feet what doesnt allow him to run properly as hes knees dont seem to bend right for him to be able to run properly).
He also unaware of the dangers around him and cant climb stairs (only crawls) and sometimes requires wrist reins as he will try to wander off and he will try and communicate with strangers and very vulnerable and would just take off with anybody if not watched close enough.
Etc etc..

Anyway partner rang today as we got the letter and said he feels the decesion is wrong and she asked for reasons why he thought this. So she logged it all down on the system and said she wiill ask them to reconcider the application and if we get declined again we are still open to go tribunel (which we are happy to do if needed)..
So again we now just have to wait to see if they will concider it for us or not.. so again im on the waiting list..

i would love to live in the bubble these people seem to live in lol. when matt was about that age they said "not much difference between him and another 5yr old" i said come out after school round here and see Children as young as 4 playing in the street with Children not much older!!! i cant even let matt play in back garden alone so how can you say he is in same situation?
i went to tribunal for my own health problems and they were lovely, i didnt get it because the person supporting me (council support worker) told them i was applying for care not mobility even though the tribunal asked about 3 times, they actually apologised for not awarding me the benefit because i wasnt entitled to care but i was to mobility but because she had said i didnt want mobility looked at i couldnt get it. they told me to go straight out and reapply (i didnt) different when its your Children and you have a diagnosis of so many problems though that are going to be there for life.
corinne

I too would love to live in the bubble they do lol.
Its ok for them to sit and say oh i think hes on same level as any other 5yr old child, but i would love them to have to live and deal with him for a full week as it would soon change there views and opinions.
They dont realise how hard it can be for us parents who have disabled children, as alot of them working for DLA have normal everyday lives, some dont even have Children! but quick to judge others.
I honestly think the system should change and that an assessor should live within the family for a several days (Like come for 2days each week over 3weeks to give them a clear picture. And spend time within our households from the time the child awakes to the time the child goes to sleep [i know this could be hard as they do require rest themselves and do have a life of there own but no harm in having several workers on shift pattens] as i honestly think if they could see what care and requirements our children need, and see how hard it can be for them over the days i think they would feel the need to treat each application more carefuly and then everyone would get what they are entitled to. But again they wont do this as it would cost to much money as usual..(& would mean application request would take alot longer to be awarded)